CHRONIC



P A I N

WITH
LUPUS

 

PAIN DEFINED by IASP

"an unpleasant sensory and emotional experience associated with
actual or potential tissue damage or described in terms of such damage."

This definition is valuable because it addresses psychological factors
and it emphasizes the experiential nature of pain.

Pain is an Experience as well as a Perception

and so it can be treated Psychologically as well.


CHRONIC PAIN - DEFINED - (pain scale)

  • Pain that goes from bad to worse to unbearable yet is consistent in it's presence.
  • Pain that lives with you every day of your life, never ceasing, not even long enough to get a night's sleep, can be one of the worst things about having lupus.
  • Because lupus primarily affects women, I found it interesting that the National Institute of Health (NIH) noted that
    women report more severe and chronic pain than men,
    and urged doctors to factor sex into
    diagnosing, treating,  and researching chronic pain management.
  • The NIH Revitalization Act of 1993 mandated that women and minorities be included in clinical research.
  • Previously, pain research had been male-oriented because:
    The alleged rationale has been that the estrus cycle in women would confuse the results (?!)
  • It may be true that women react to pain differently than men do.
  • If pain may 'arise differently' in women, then more research is needed focusing solely on chronic pain in women!
  • Simply ignoring women's pain is not a viable solution, and more therapies for the relief of chronic pain must be found.
  • The first line of defense against chronic pain in inflammatory diseases like lupus and arthritis has always been pharmacological.
  • Non-steroidal anti-inflammatory drugs (NSAIDs), such as aspirin and ibuprofen (Advil or Motrin) have been used to treat mild cases on short term,  with success.
  • For more intense pain that does not respond to NSAIDs, narcotic analgesics such as continuous/sustained release meds,  may be used long term.
  • However, for some patients, with chronic pain, the long term and addictive effects of narcotics may be too much for them to be used on a daily basis and over the course of time with the already established debilitating effects of their illness, chronic lupus.


This is where Alternative Therapies have stepped in:

  • Pain relieving techniques like hypnosis and magnetic stimulation therapy have given patients a non-medicinal  alternative that may be more beneficial in the long term.
  • It is known that a patient's cognitive and emotional state
    can influence their physiological system.
  • Changes in their physiological state can affect their overall function.
  • This intimate mind/body relationship can be used to treat painful states via hypnosis.
  • Enhancing the nervous systems inhibitory process can modify pain.
  • Hypnosis can induce a state of relaxation, calmness and  peacefulness even in the midst of external distress.
  • This temporary state of calm can effectively reduce a patient's  subjective experience of pain.
  • Why would any clinician want to use any procedure that must  be  explained and justified to the traditional world of medicine?
    Such as massage, chelation therapy, homeopathics, herbal preparations.
    Because they can work.
    Not always in a spectacular fashion
    and likely not with every patient
    and certainly not with every condition,
    But it can and does work individually, as has been shown over time.
  • Perception of pain is as individual as each person.
  • What works for one person may not work for another.
  • It may be helpful for the person living with chronic pain to  experiment with different therapies.
  • It is advisable to start with the least invasive, or least  expensive,   therapies and go on from there.
  • Try using ice packs before taking medication, and try  medication before seeing a surgeon.
  •  The main thing to remember is that no one needs to suffer needlessly, and to keep looking until you find the pain relief that works for you.


    ALTERNATIVE MANAGEMENT

    Physical Agents can all be helpful with individual patients, under the right circumstances.

    • heat pads

    • cold, ice packs

    • exercise

    • massage

    • immobilization, rest

    • use of TENS units

    • hypnosis for some patients

    • Relaxation

    • Education

    • Music

    • Deep Breathing

    • Meditation


    PAIN  SCALE
    Levels of Pain  FROM 0 - 10


    0  Pain Free

    1  Very minor annoyance - occasional minor twinges.
       No medication needed.

    2  Minor Annoyance - occasional strong twinges.
       No medication needed.

    3  Annoying enough to be distracting.
       Mild painkillers take care of it.

    4  Can be ignored if you are really involved in    
       your work, but still  distracting.

       Mild painkillers remove pain for 3-4 hours.

    5  Can't be ignored for more than 30 minutes.
       Mild painkillers ameliorate pain for 3-4 hours.

    6  Can't be ignored for any length of time,
       You can still go to work and participate in     
       social activities.
       Stronger painkillers reduce pain for 3-4 hours.

    7  Makes it difficult to concentrate and
       interferes with sleep

       You can still function with effort.
       Stronger painkillers are only partially
       effective.

    8  Physical activity severely limited.
       You can read and converse with effort.
       Nausea and dizziness set in as factors of pain.

    9  Unable to speak.
       Crying out or moaning uncontrollably - near    
       delirium.

    10 Pain level actually makes you pass out and to become
       unconcious. Pain management is a must at this point!

    PAIN MYTHS

    Severe or chronic pain cannot be effectively controlled.

    Opioids are always addictive and a treatment of last resort.

    Pain is always evidence of disease progression.

    It is more admirable or socially acceptable to ignore pain.

    Pain is an unavoidable result of aging or disease.

    Pain is a deserved punishment.

    A patient’s pain perception can accurately be correlated with vital sign changes and evidence of injury.

    Patients in pain readily express their pain to health care providers.

    Patients of certain cultural, ethnic, or socio-economic backgrounds consistently under-report or over-report their pain.

    Opioids are addictive and a treatment of last resort because of unmanageable side effects.

    Patients experiencing chronic pain over-report pain because they are addicted to opioids.

    Older patients, and cognitively impaired patients do not perceive pain as intensely as other patients.

    If a patient is able to sleep, they must not be in very much pain.

    The goal of chronic pain management is to keep the dose of medication as low as possible.

    Patients with a history of substance abuse who require IV opioids should never be allowed to control their own dose of medication/analgesia.

    There is no physiological basis for the moderating effects of emotions on pain perception.

    PAIN FACTS

    The patient is the best authority on his own pain.

    It is very important to know and recognize the patient’s physiological, psychological, and emotional responses to pain when developing a pain management plan.
    Without addressing these important issues, it is often difficult to develop an adequate pain treatment plan.

    Changes in vital signs do not occur with all patients who are experiencing severe pain.
    Do not rely on vital signs to determine the severity of a patient’s pain.

    Patients with pain, even severe pain, can be distracted from thinking about their pain, and may even be able to sleep.
    Don’t trust that a patient isn’t having pain because he "looks comfortable."
    Always ask, and believe the patient’s assessment of his own pain.

    The patient has the right to expect a rapid and effective response to a complaint of pain.

    Treat the pain, reassess frequently, and continue to treat until the patient is comfortable
    or side effects prevent further treatment.
    If this occurs, consult a pain expert- don’t leave a patient in pain without a treatment plan.

    A history and physical examination of the pain is very helpful.
    Details of the pain’s location, duration, radiation, and character often provide
    valuable clues about how to treat the pain most effectively.

    Medications are best given orally for long-term management of pain.

    For short-term management, like postoperative pain, the IV route is preferred (especially with acute/severe pain).

    Most pain medications have side effects.
    Effective pain relief is often accompanied by at least some of their stated side effects.
    Be prepared to treat the side effects of opioids if they occur (e.g., nausea or itching).

    A balanced approach to pain management combines non-pharmacologic and pharmacologic therapy, and frequently utilizes multiple analgesics which work by different mechanisms.

    Chronic pain patients are usually on a specific regimen of pharmacologic and nonpharmacologic therapy.
    This regimen must be continued during their hospitalizations.

    Additionally, super-imposed acute pain or acute postoperative pain, should be treated with additional opioids.