I'm Sheila Jacobs - Welcome to LIVING with Hair Loss!

(image)

Hair loss - the most widely concealed condition in the world...

Whatever the cause of hair loss, adjusting to a changed image is a challenge. When I first lost my hair through alopecia areata 7 years ago, I found very few resources on the subject, and almost nothing to help me cope with the trauma. It was before Sinead O'Connor did her big shave.

Information is the key to making choices about image, coping, and treatment. During the last 7 years I have written articles and a book on hair loss, led support groups and given seminars. Oddly enough, my hair has started to grow back, though in strange patterns - I've gone from silkhead to stubblehead.

What helped me most was talking to others with the same problem. Listed below are a number of on-line and other resources. I hope you find something that helps you deal with this taboo topic.

 


ON-LINE RESOURCES


OTHER RESOURCES

Organizations; Bulletin Boards; Videos; Articles; Books; Dissertations


ORGANIZATIONS

There are dozens of cancer, dermatology, and hair/aesthetics organizations. Those below can refer you to others. For a full list consult a directory at your library, such as Gale's Encyclopedia of Associations.

 

Cancer: American Cancer Society
1599 Clifton Rd. NE
Atlanta, Georgia
USA GA 30329
Phone: (404) 320-3333
Toll-free: 1-800-ACS-2345
Fax: (404) 325-0230
Cancer Care
1180 Avenue of the Americas
New York, New York
USA NY 10036
Phone: (212) 221-3300
Fax: (212) 719-0263
Cancer Control Society
2043 N. Berendo St.
Los Angeles, California
USA CA 90027
Phone: (213) 663-7801
Candlelighters Childhood Cancer Foundation
7910 Woodmont Ave., Ste. 460
Bethesda, Maryland
USA MD 20814
Phone: (301) 657-8401
Toll-free: 1-800-366-2223
Fax: (301) 718-2686
National Alliance of Breast Cancer Organizations
1180 Avenue of the Americas, 2nd fl.
New York, New York
USA NY 10036
Phone: (212) 719-0154
Fax: (212) 768-8828
National Coalition for Cancer Survivorship
1010 Wayne Ave., 5th fl.
Silver Spring, Maryland
USA MD 20910
Phone: (301) 650-8868
Fax: (301) 565-9670
National Women's Health Resource Center
2440 M St. NW, Ste. 325
Washington
USA DC 20037
Phone: (202) 293-6045
Fax: (202) 293-7256
Male Pattern Baldness: Bald Headed Men of America
3819 Bridges St.
Morehead City, North Carolina
USA NC 28557

 
Alopecia Areata: National Alopecia Areata Foundation
Box 150760, San Rafael, California
USA CA 94915-0760
Phone: (415) 456-4644
WWW
Email: naaf@compuserve.com
Hairline International
39 St John's Close
Knoll, Solihull
West Midlands
England B93 0NN

 
Canadian Alopecia Areata Association
Box 42084, RPO Millbourne
Edmonton, Alberta
Canada T6K 4C4

 
National Alopecia Network
Box 21776
Detroit, Michigan
USA MI 48221
Phone: (313) 861-0331
Associazione Mediterranea Alopecia Areata
Via Sinni, 26
Matera 75100
Italy
WWW site
Email: amaait@yahoo.it
Alopecia Areata Patientenvereniging
Klaverstraat 74
5025 MD Tilburg
The Netherlands
Phone: 013 53 60 320
WWW site
Email: info@aapv.nl
Svenska Alopeciaföreningen
Box 4070-09
128 05 Bagarmossen
Sweden
Female Pattern Baldness: A Friend Indeed (newsletter "for women in the prime of life")
Box 515, Place du Parc Stn
Montréal, Québec
Canada H2W 2P1
Phone: (514) 843-5730

BULLETIN BOARDS

Alopecia Support Online (ASO) is a new free conference, not open to the general public. You can connect to this FirstClass BBS using a Macintosh or Windows 3.1 (or higher) system. To take part in ASO, set your communications software to use 8-N-1 parameters and VT-100 emulation, and login to the Travel Info Exchange (TIE) by having your modem dial (508) 287-0660. Choose a user-id and password, and send a message to "Administrator" asking for access to the Alopecia Support Online conference; within 48 hours your access will be set up. To enjoy the full features of the FirstClass interface download the FirstClass Client 2.6 software; details are available online.

Further information/problems? Contact Tom Brosnahan by e-mail at tbros@infoexchange.com


VIDEOS

Contact Organizations listed above for videos on all sorts of topics. Videos are particularly useful for viewing how to choose, fit and care for hairpieces; ways of using scarves; applying makeup; and coping. Cancer centres often have video libraries.

 


ARTICLES

There are vast numbers of articles on hair loss, too many to mention here and update.

Public, university and medical libraries have articles in medical and psychology journals.

Large public libraries also have databases of newspaper and magazine articles which you can search for the subjects alopecia, baldness, hair or hair loss; they may have copies of the articles on microfiche.

 


BOOKS

Medical Books on Hair Loss/Guides to Regrowth

 

Aldhizer, Gerard & Krop, Thomas
The Doctors' Book on Hair Loss. New York: Prentice-Hall, 1983

 

Bombeck, Erma
I Want To Grow Hair. New York: Harper & Row, 1989

 

Bruning, Nancy
What You Can Do About Chronic Hair Loss. New York: Dell, 1993

 

Bruning, Nancy
Coping with Chemotherapy. New York: Doubleday, 1985

 

Bryant, Andy
The Baldness Cure. London: Ebury (Random House), 1994

 

Dawber, Rodney and Rook, Arthur
Diseases of the Hair and Scalp. Oxford, England: Blackwell, 1982

 

Van Deusen, Edmund
What You Can Do About Baldness. New York: Stein & Day, 1978

 

NCCS
Teamwork: The Cancer Patient's Guide. NCCS

 

Pervan, Anthony
Natural Hair Growth. F. Fell, 1987

 

Sandomir, Richard
The Incredible Adventures of Baldman. New York: Macmillan, 1991

 

Steel, Elizabeth
Coping with Sudden Hair Loss. Wellingborough, England: Thorsons, 1988

 

Thompson, Wendy J. & Shapiro, Jerry
Alopecia Areata: Understanding and Coping With Hair Loss. Baltimore, Maryland: Johns Hopkins UP, 1996

 

US Dept of Health and Human Services
Young People with Cancer: A Handbook for Parents. 1982

 

Hair - History, Sociology

 

Cooper, Wendy
Hair. London: Aldus, 1971

 

Corson, Richard
Fashions in Hair. London: Peter Owen, 1965

 

Woodforde, John
The Strange Story of False Hair. London: Routledge & Kegan Paul, 1971

 

Fiction

 

Cameron, Anne
A Whole Brass Band. Madeira Park, British Columbia: Harbour Publishing, 1992

 

Christensen, Lars Saabye
Herman. NAAF (see Organizations), 1992

 

Nesbit, E.
Melisande. London: Walker Books, 1989

 


UNIVERSITY DISSERTATIONS

Jayne Raquepaw, Texas A&M University, USA, 1990
Psychological and Behavioural Affects of Alopecia

Copyright © 1995, Sheila Jacobs
This page was last updated on June 5, 2002 . Site maintained by Tom Benjamin.