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Sometimes your whole life can be changed by the click of a
single button.
3 years ago I clicked on Cole Webb's Site
In a blink of an eye this little Angel changed my life
forever.
I love you Sunshine Boy! ~
Always
Over the last 3 years I've had the privilege to get to know so many wonderful people
in the "SMA Family" online, including my "cyber sister" MJ. We've
laughed together, cried together, shared hopes and dreams together. We've
celebrated birthdays that are considered nothing short of Miracles,
and spent countless nights lighting candles, saying prayers, and
supporting each other, while keeping a distance vigil over a child that may not
see the dawn.
Together we will find a cure !
As we go through life we all leave footprints
Small marks in the sands of time that others will remember us
by ....
what
are yours ??
Help Make a Difference - Help find a cure for SMA
Current Fundraisers
& Memorial Projects
SMA Support Fundraisers
SMA AWARENESS WRISTBANDS
AVAILABLE!
from
Wristbands are
now available for $2.00 USD (approximately $2.50 Canadian)
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Auntie
Jenny's Hats!
Custom Made Hand-Knit hats made JUST for you!
Classic
Wool/Acrylic Hats
Infant and Children's Hats $15.00
Adult Hats $20.00
Machine wash/dry
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Cotton
Hats
Organic available
Infant and Children's Hats $20.00
Adult Hats $25.00
Hand Wash
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The
Famous Hatterpillars
Infant and children's Hats $20.00
Adult Hats $25.00
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Cuffed
Hats
For men and women.
Ribbing around the brim for a more fitted look.
Solid colors only $15.00
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Specialty
Hats
Infant and children's Hats $20.00
Adult Hats $25.00
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~Mittens~
Match
them to a Classic Hat or Hatterpillar
Add a scarf!
Prices vary...please email for details.
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For
a short time only
"TWIRLY GIRL SCARF"
$45.00
Twirly Girl Scarves are unique and stylish.
Made with very high quality yarn
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Custom
design YOUR hat for YOUR needs.
Auntie Jenny can match ANY coat!
There is a
$1.00 shipping fee per hat.
Paypal, credit card, check or money order
A portion of
Auntie Jenny's profits is donated to SMA Support.
To
order or for more information email
jenny@auntiejennyhats.com
and for more photos and options, visit her site at: http://www.auntiejennyhats.com
SMA
Bracelets!
Beautiful
handmade beaded bracelets that can be personalized as specified
with the name of a loved one, your name, Cure SMA etc....or
if you prefer, no personalization at all! All bracelets
are custom made with choice of colors as follows: Blue,
Pink, Purple, Lavender or Garnet with simulated pearls for
accent. Your choice of pewter spacers are Flowers,
Butterflies or Hearts. All bracelets are made with
stretch cord for comfort and fit and no two bracelets are
alike. Bracelets are 13$ each which include S&H.
5$
from each bracelet purchased will be donated back to
SMA Support. These bracelets make beautiful, personalized
gifts and are the perfect way to remember someone special.
If ordering for a child please specify age for fit. Orders
for bracelets may be e mailed to Susan Merendino (Godmother to
both Eric and Jessica Slavik SMA Type 1, two very
precious SMA Angels) at smer5852@bellsouth.net
Paypal payment preferred; Paypal ID is also the same as the e
mail address. Or you can send check or MO to Susan
Merendino, 11040 Keene Street, Spring Hill, FL 34608.
Please
note choice of bead color, spacer choice and name or phrase
you would like to appear on your bracelet when ordering.
Please allow up to one week to ship if purchased through paypal,
or up to 10 days if purchased by check or MO through the US
Postal Service. These bracelets are handmade with loving care
with the hope of helping Laura Stants and SMA Support to
continue to provide equipment, special formulas and
much needed support for our very special SMA children and
families.
You
know Discovery Toys! They are the premier educational toy
company! To see what is available, visit www.discoverytoysinc.com.
To place an order, please contact Kim
Sykora and let her know what
you'd like. You will need to pay tax and shipping on your order.
Kim is donating 20% directly back to SMA Support!
MJ
Purk, Kristin Webb and Linda Zuroff have created a shop for Cole's
Quilts. Proceeds will benefit Cole's Quilts and SMA Support both. To
visit the shop, go to http://www.cafepress.com/colesquilts.
The above picture is of the logo that is on everything. The most
important thing being sold right now is the 2006 Cole's Quilts
Calendar! Calendars are sold for $20 each at the link above! Happy shopping!
SMA
Support Holy Bear!
Order
this sweet Holy Bear, designed by MJ Purk (SMA Type 1+). The bear
is $10, and comes with the Bible verse that Nicki Ard (SMA Type 2) lived
as her life motto: 2 Corinthians 12:9 " My grace is sufficient for
you, for POWER is perfected in weakness." Email me with your name,
address, and number of bears you would like ! The bears arrive the end
of October.
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iGive
iGive has
been one of the easiest fundraisers that SMA Support has ever had.
It's simple, it's easy, and it's effective. Shop on line? Go
through iGive, bring in money for SMA Support! Go here
for more information, and start shopping by hitting the above icon!
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Mary Kay
50% of
every Mary Kay order you place will go back to SMA Support! You
can order online, e-mail, or call Jennifer Minter with an order (561)
743-0864. She accepts checks as well as Visa, MC, or Discover.
All products come with a 100% satisfaction guarantee or your money back!
Visit Jennifer's site at www.marykay.com/jenniferminter
for more information on products, or to order!
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The Faces of SMA CD!
MJ Purk
, with the help of Kimberley Jurens , Allen Hunnie Audio Inc.,
and Polar Bear Productions Ltd.®, is
creating a PowerPoint©® Presentation
“The
Faces of SMA” is a presentation of pictures of children and adult SMA
Earth Angels,
Angels in Heaven, NIV users, trach users, and palliative care users; all are
welcome.
Thank
you to all the families who submitted pictures and ordered CDs
Hats of Hope!
NEW FOR THE
ENTIRE YEAR OF 2005:
SMA
Hats Of Hope 2005 Campaign
Wear SMA Hope....Give SMA Hope. With Hats of Hope, SMA families across
the country are literally putting on their thinking caps and looking up
at Hope. They know they will do whatever it takes to find a cure for SMA,
Spinal Muscular Atrophy.
By choosing a hat
or visor, you can bring hope into view. Each time you wear your
hat or visor, don't forget to look up and see HOPE embroidered
under the brim.
Go to "Products" and pick
out ANY of the hat(s) or visor(s) you prefer. When you check out, make
sure you enter the special promotional code of SMA2005 . This will give free shipping to people who
order, and 40% going back to SMA!
It's that simple to
Wear SMA Hope and Give SMA Hope! We will do whatever it takes for a
cure.
Every Time You Buy A Hat, 40% of the Proceeds Will Go To:
RESEARCH Via Miracle for Madison
& Friends at Ohio State
FAMILY SUPPORT Via SMA Support
Hats or Visors are $20 USD each.
Visors have a slot on the front to put a picture of your
child in it.
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